- Saturday I missed my first day of exercises in over three years … just too weak. And, I had to move my long program from Monday to this morning because of weakness and an upset stomach. I really missed my exercise routine. I knew I had to “get back on the horse” this morning and fortunately I could. By this afternoon, I noticed some muscle soreness.
- Fasciculations increased dramatically for some reason. The facial and hand tremors were the most obvious. I will have to ask my neurologist if he is understands why. I still have more noticeable twitching in the arms and hands today.
- Leg and abdominal muscle weakness was the most pronounced. My ability to stand up from a chair and my balance were the most effected. I am assuming that the legs are weaker because they are carrying 180# of weight. Why would the abdominal muscles be so weak?
- I noticed a greater weakness in the left side of my body. I know that muscle weakness is asymmetrical in those of us living with Kennedy’s Disease. I question why the left side when my dominant side is the right?
- During my long exercise program today, I noticed my upper body strength today was very good … perhaps 90% of normal while my lower body was still 70-75%. Abdominal strength is somewhere in between.
- Because of the wasting of the facial and upper body muscles, I look much thinner after only a few days of not, or only lightly, eating. Two neighbors commented that I looked thin or asked if I was dieting.
- My wife takes far better care of me than I do. Saturday I ate like I was well again (a cheeseburger, ice cream, and shrimp pasta with garlic-butter sauce). Come Saturday night and Sunday, I paid the price the price for overindulgence. When my wife took control of my wellbeing I quickly began to mend.
I am perhaps over-analyzing this, but I find it interesting. I also hope to learn from my mistakes (that would be a first).