I started this blog nine years ago on a whim. I wanted to capture my thoughts, experiences and emotions of living with this condition called Kennedy’s Disease. In the forty-plus years of being associated with this progressive neuro-muscular disorder, I have had my share of ups and downs. Many of my 860 blogposts are a testament to my life of living with Kennedy’s Disease.
A life where…
- Hopes have risen and been dashed
- Friends made and lost
- Lessons learned and relearned
- Experiences documented and shared
Fortunately, my spirit remains strong. It will not allow me to wallow in self-pity for long. Whenever my resolve is tested, my spirit wins every time.
If I consider how bad things can be in the years ahead, what I can still accomplish today becomes a blessing. When I find myself feeling sorry for what I can no longer do, I take a moment to look back on a life filled with wonderful memories. When I lose hope, the love of my family and friends lifts me up.
My moto is “Live for Today and Plan for Tomorrow.” I do not want to let negativity ruin my day. Yet, I want to be prepared for what might be in my future. I find if I plan for it, the experiences never seems quite as bad.
All of you living or associated with this rare disorder are my extended family. Thank you for being there for me when I need a lift.