If you have the opportunity, thank your Senators and Representatives for passage of this act.
MDA has actively continued to fight for the passage of amendments to the MD-CARE Act that are currently being considered by Congress. These would expand on research progress made and keep momentum robust and focused. Among the areas of emphasis within these amendments are cardiac and pulmonary research and an increased focus on resources for adults living with muscular dystrophy.
Every day, scientists in some of the world’s best research facilities are making exciting discoveries, developing new drugs for the treatment of muscular dystrophies and improving the quality of therapeutic treatment and clinical efforts — all at an unprecedented pace. Yet, tens of thousands of families living with muscular dystrophy are still waiting and counting on new treatments and cures. Increased federal support is needed to ensure researchers can continue making progress . A stronger commitment from the federal government will help ensure that MDA's life-changing momentum continues.
MDA is grateful to the muscular dystrophy community, as our combined voices and tireless fight helped ensure amendments to the MD-CARE Act passed in the House (H.R. 594) and Senate (S. 315) earlier this year. Next, the MD-CARE Act will go to the President's desk for his signature. Together, we will ensure the lifesaving research and clinical momentum put in place through this bill remains strong and focused.
MDA salutes our Congressional champions and their extraordinary staffs for their vision and leadership: Representatives Michael Burgess (R-TX) and Eliot Engel (D-NY) in the U.S. House of Representatives and Senators Roger Wicker (R-MS) and Amy Klobuchar (D-MN) in the U.S. Senate.