My Motto: LFT-PFT

I started this blog nine years ago on a whim. I wanted to capture my thoughts, experiences and emotions of living with this condition called Kennedy’s Disease. In the forty-plus years of being associated with this progressive neuro-muscular disorder, I have had my share of ups and downs. Many of my 860 blogposts are a testament to my life of living with Kennedy’s Disease.

A life where…

• Hopes have risen and been dashed
• Friends made and lost
• Lessons learned and relearned
• Experiences documented and shared

Fortunately, my spirit remains strong. It will not allow me to wallow in self-pity for long. Whenever my resolve is tested, my spirit wins every time.

If I consider how bad things can be in the years ahead, what I can still accomplish today becomes a blessing. When I find myself feeling sorry for what I can no longer do, I take a moment to look back on a life filled with wonderful memories. When I lose hope, the love of my family and friends lifts me up.  

My moto is “Live for Today and Plan for Tomorrow.” I do not want to let negativity ruin my day. Yet, I want to be prepared for what might be in my future. I find if I plan for it, the experiences never seems quite as bad.

All of you living or associated with this rare disorder are my extended family. Thank you for being there for me when I need a lift.

Stay upright!

I love Thanksgiving

Thanksgiving is an important time of year for me. It is a time when our family gets together to 'break bread' and share our thoughts. Once everyone sits down, and we all hold hands to pray, sighs can be heard around the table. At that moment, everything is all right.

It is easy to focus on the negative things, but Thanksgiving gives us an opportunity to say THANK YOU for all the good–for all the blessings in our lives.

Today, I am thankful for …

• The men and women of our armed forces, and their families. They sacrifice so much without adequate appreciation, compensation or reward.
• For the fire, rescue and police men and women who are there for us in time of need.
• Being able to live in this country. We often complain about what is wrong, but we seldom say thank you for all that is right. I would not want to live anywhere else.
• The doctors and researchers who are searching for a treatment or cure. I have said it before, but without them there would be no hope.
• My wonderful, thoughtful, patient, understanding and beautiful wife. She makes life worth living every day.
• Both of our families, as well as our friends and neighbors. These people are my support system. Life without family and friends would be pretty miserable and boring.
• My overall health and the health of our families. Too often we take this for granted until something bad happens.

From our house to yours, have a safe, 

healthy and happy Thanksgiving

Photos from Littlethings.com, wikipedia,and wikimedia