I started this blog nine years ago on a whim. I wanted to
capture my thoughts, experiences and emotions of living with this condition
called Kennedy’s Disease. In the forty-plus years of being associated with this
progressive neuro-muscular disorder, I have had my share of ups and downs. Many
of my 860 blogposts are a testament to my life of living with Kennedy’s
Disease.
A life where…
- Hopes have risen and been dashed
- Friends made and lost
- Lessons learned and relearned
- Experiences documented and shared
Fortunately, my spirit remains strong. It will not allow me
to wallow in self-pity for long. Whenever my resolve is tested, my spirit wins
every time.
If I consider how bad things can be in the years ahead, what
I can still accomplish today becomes a blessing. When I find myself feeling
sorry for what I can no longer do, I take a moment to look back on a life
filled with wonderful memories. When I lose hope, the love of my family and
friends lifts me up.
My moto is “Live for Today and Plan for Tomorrow.” I do not
want to let negativity ruin my day. Yet, I want to be prepared for what might
be in my future. I find if I plan for it, the experiences never seems quite as
bad.
All of you living or associated with this rare disorder are
my extended family. Thank you for being there for me when I need a lift.
Stay upright!
No comments:
Post a Comment
Please feel free to comment. By taking a moment to share your thoughts you add much to these articles. The articles then become more than just something I said or believe. In addition, by adding a comment, you might just be helping the next reader by sharing your opinion, experience, or a helpful tip. You can comment below or by sending me an email. I look forward to hearing from you.