Caregivers usually do not receive a lot of appreciation. Often caregivers, after giving and giving, day after day, end up needing to be cared for themselves. They not only feel the weight of the world on their shoulders for the person they are caring for, but they also have to care for their own needs and the needs of the other family members. Stress can build up in the caregiver. Depression is common among caregivers. When this happens, it is usually the result of feeling everything is their responsibility and they have nowhere to turn for help or support.
Living with Kennedy's Disease isn't just about me. It is about everyone who provides support. I have mentioned more than once, I am not always the easiest person to live with. To put it bluntly, my wife is a saint for putting up with me. Fortunately, she understands and accepts most of my shortcomings. In those rare occasions where I push back a little too much, a right uppercut straightens me out. 😎
For those of us that are fortunate enough to have a caregiver, we need to understand that the caregiver needs caring for, too. Unless contracted, caregivers almost never get a vacation or have time to just relax and pamper themselves. It is usually a 24-7 job.
Caregivers need your emotional support, your understanding, and most importantly, your love when things do not quite go as planned.
The National Family of Caregivers provides the following "Tips for Caregivers."
1. Caregiving is a job. Reward yourself with personal time often.
2. Watch for signs of depression, and do not delay in getting professional help when you need it.
3. When people offer to help, accept the offer and suggest specific things that they can do.
4. Educate yourself about your loved one's condition. Understanding it will help you communicate effectively with the person and the doctors.
5. There is a difference between caring and doing. Be open to technologies and ideas that promote your loved one's independence.
6. Trust your instincts; most of the time they will lead you in the right direction.
7. Caregivers often do a lot of lifting, pushing, and pulling. Be good to your back.
8. Seek support from other caregivers. There is great strength in knowing you are not alone.
The National Family of Caregivers provides the following "Tips for Caregivers."
1. Caregiving is a job. Reward yourself with personal time often.
2. Watch for signs of depression, and do not delay in getting professional help when you need it.
3. When people offer to help, accept the offer and suggest specific things that they can do.
4. Educate yourself about your loved one's condition. Understanding it will help you communicate effectively with the person and the doctors.
5. There is a difference between caring and doing. Be open to technologies and ideas that promote your loved one's independence.
6. Trust your instincts; most of the time they will lead you in the right direction.
7. Caregivers often do a lot of lifting, pushing, and pulling. Be good to your back.
8. Seek support from other caregivers. There is great strength in knowing you are not alone.
A good resource for caregivers can be found here: Good Caregiver Tips Cheat Sheet
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