Friday, April 12, 2019

Have You or a Loved One Been Recently Diagnosed with a Rare Disorder?

Kennedy's Disease (SBMA) is considered a rare disorder.  Approximately 1 in 40,000 have this condition.

NORD's latest addition to its patient and caregiver resource center is this video providing tips for newly diagnosed patients and their families. 

The video includes further information on recommendations including giving yourself time to adjust, connecting with others and learning about your rare diseases. 

Click HERE or on the title below to watch the video.


10 Tips for Newly Diagnosed Rare Disease Patients and Families

For more resources and information, visit NORD's resource center here: https://rarediseases.org/for-patients...
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