tag:blogger.com,1999:blog-6390441292756538494.post2835823390575592773..comments2024-03-27T01:10:45.967-04:00Comments on Living with Kennedy's Disease: What “living with” means to meBrucehttp://www.blogger.com/profile/17127100017051232292noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6390441292756538494.post-86638306351534960262012-02-04T15:52:16.559-05:002012-02-04T15:52:16.559-05:00Hi Bruce
Thanks for writing “Living With. . .” tw...Hi Bruce<br /><br />Thanks for writing “Living With. . .” two of your recent posts triggered fond memories of my Grandpa Joe. I know that he too had KD; but he did not know his diagnosis was ALS but he just lived longer than expected. As a young child I just knew he enjoyed life; giving me an example for how to live long before I knew about KD and the challenges of living with it. I often stayed with my maternal grandparents and participated in his daily routine. He had stamp and coin collections to explore. As a former Navy sailor he could explain the stars and constellations. I have a vivid memory of watching him sitting in his wheelchair at his desk working on a large paint-by-number landscape. He had to use both hands to combat his hand tremors. I still have two of his paintings. I have always been inspired by how he enjoyed life in spite of his disability. Know those memories help me be determined to emulate his example. Thank you for bringing it into focus as we start a new year living with KD.<br /><br />DavidAnonymousnoreply@blogger.com